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Hayley Goleniowska - Down Syndrome Advocate & Author of Blog Downs Side Up

Hayley Goleniowska

Profile updated May 19, 2026
LocationTravels from Cornwall, UK
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About Hayley Goleniowska

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What I Have Learnt Since Becoming An 'Expert' In Down Syndrome

My daughter is not ‘special’ or ‘inspiring’ but an essential part of our family and community. Eleven years ago I knew nothing more than a handful of outdated generalisations about Down’s syndrome. Like many of you I undoubtedly thought I knew what it meant, how those who have the condition live their lives. But the notions I clung to when pregnant with our second, much-wanted baby, couldn’t have been further from my current reality.

Down's syndrome child Natalia begins modelling assignments

Natalia's mum, Hayley Goleniowska said: "People fall in love with her every time they meet her. She is living proof that Down's syndrome is very beautiful and special."

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