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Kathy Giusti - Founder of the Multiple Myeloma Research Foundation, Founding Co-Chair of the HBS Precision Medicine Accelerator; Author of "Fatal to Fearless: 12 Steps to Beating Cancer in a Broken Medical System"

Kathy Giusti

Profile updated January 7, 2026
LocationTravels from New York, NY, USA
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About Kathy Giusti

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How to reduce racial disparities in cancer

Underrepresentation of racial minorities in clinical trials for cancer and other diseases isn’t new; there has been a significant dearth in the representation of minorities in oncology trials for years. There is a strong consensus among all key stakeholders about the importance of addressing the problem of inadequate representation of minority patients in clinical trials and an urgent desire to develop sustainable solutions, as demonstrated at a recent American Association for Cancer Research (AACR) meeting. Participants included leaders from across the cancer ecosystem: patient organizations, industry, government, researchers, academic medical centers and community-based organizations.

How One Woman Used Her Multiple Myeloma Diagnosis to Fuel the Search for a Cure

(Health Magazine) – After being diagnosed with multiple myeloma, Kathy Giusti started the Multiple Myeloma Research Foundation (MMRF), a nonprofit organization, to help accelerate the search for a cure.

Books by Kathy Giusti

Fatal to Fearless: 12 Steps to Beating Cancer in a Broken Medical System  - Book by Kathy Giusti

Fatal to Fearless: 12 Steps to Beating Cancer in a Broken Medical System ” (2024)

An empowering, soul-baring personal account and guide from a two-time cancer survivor and healthcare disrupter that shows anyone how to deal with a frightening medical diagnosis in America today, providing the knowledge necessary to take ownership of personal wellbeing and maximize the chances for survival. More than twenty-five years ago, Kathryn Giusti was diagnosed with multiple myeloma at age thirty-seven and given three years to live. With a young child, a happy marriage, and a successful career, Giusti had too much to live for. An “impatient patient,” she overcame her fear and got to work, learning to advocate for her own care. This book is the result of all she’s learned about how to get the best outcome from America’s opaque and sometimes impossible-to-navigate healthcare system. Fatal to Fearless tells the story of how Giusti took on the system and turned it to her advantage not once but twice when she was diagnosed with breast cancer a few years ago. It is a crash course in surviving a grim diagnosis, organized around twelve simple steps, with practical tips for everything from how to build your healthcare team and learning which online sources to trust, to understanding the science and identifying which tests to ask for in the new genomic era and how to access the treatments and studies that could save your life. At its center is a gripping personal story that reveals difficult, yet honest truths about illness, family, friendship, marriage, and the business of medicine. Giusti lays bare her soul as she walks you through the steps for handling any diagnosis and includes insights from medicine’s top insiders on the frontlines of physical and emotional healing and care. Sick people deserve a fighting chance. Giusti’s mission to democratize medicine—and healthcare—has never been more imperative, or more urgent. Hopeful, wise, and packed with hard-won knowledge, this book gives you the concrete tools and inspiration to fear less and live more.

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